Alpha depends on submissions from the public and from public data sources. As these submissions depend on the integrity of the input, no reliance should be made on the integrity of the specific data points. However, those who desire to update or remove a listing may do so through the Alpha National Organization For Rare Disorders Inc update page using the TryAd Directory Management System (TDMS).
The edit request form may be found at https://www.alphabusinesstrends.com/update/national-organization-for-rare-disorders. Thank you for your help in keeping this directory accurate and up-to-date.